SHRINE Data Reference Guide

Contents Basics Terminology Availability and Maintenance Standards Core Standards Demographic Standards Diagnoses Standards Medications Standards Site to RxNorm Associations Type Mapping Site to NDR-RT Mapping Labs Standards Local Data Semantics Preservation Local Diagnoses Data BWH and MGH Diagnoses Local Medications Data BIDMC Medications BWH and MGH Medications CHB Medications [ SHRINE Help Main Menu ] | # Basics SHRINE currently makes patient demographics, diagnoses, medications, and a sample of laboratory results data available to be searched. SHRINE Core ontology is a collection of terms that describe these data and can be used to construct queries. The terms are arranged into a hierarchy for easy navigation; the ontology can be searched for a particular terms as well. A standard terminology was selected where possible to represent each type of data accessible through use of the system. A terminology was modified as necessary to fit the requirements of SHRINE. ## Terminology The following standard terminology provides the baseline for the Core ontology: Demographics – Patient demographic data available at each participating SHRINE hospital include: Age Gender – Health Level Seven International (HL7) Administrative Gender Language – International Organization for Standardization (ISO) ISO 639-1 Marital status – HL7 Marital Status Race and Ethnicity – Centers for Disease Control and Prevention (CDC) Race and Ethnicity Code Sets Diagnoses – Diagnoses are identified by National Center for Health Statistics (NCHS) ICD-9-CM standards and Clinical Classification Software (CCS) hierarchy. Medications – Medications are identified by the Unified Medical Language System (UMLS) RxNorm (Ingredient) and the Veterans Administration (VA) National Drug File Reference Terminology (NDF-RT) hierarchy. Lab Tests – Data on lab tests is derived from the Clinical Data Repository (CDR). Data are identified by Logical Observation Identifiers Names and Codes (LOINC) and Partners HealthCare System. The Core ontology was constructed following recommendations of relevant government and private sector bodies using a pragmatic approach. It is a static snapshot of underlying standards. As they change (for example, there are regular updates of ICD-9-CM and RxNorm), we expect that the Core ontology will follow after a reasonable delay to accommodate the effort of introducing the changes, resolving issues and completing quality assurance processes.